RDI IS A STRONG VOICE FOR PERSONS LIVING WITH A RARE DISEASE AND THEIR FAMILIES AROUND THE WORLD.
our priorities
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RDI EVENTS
Formal Side-Event to the UN High-Level Political Forum on Sustainable Development (HLPF), 6 July 2022, Online
Rare Diseases International’s Informal Side-Event to the 75th World Health Assembly, 24 May 2022, Geneva
Rare Disease Day 2022 Event, 28 February 2022, Dubai
global EVENTS
milestones
RARE DISEASES INTERNATIONAL
FIRST UN POLICY EVENT
UHC INCLUDES RARE DISEASES
AGREEMENT WITH WHO
UN RESOLUTION
GLOBAL ADVOCACY CAMPAIGN
RARE DISEASES INTERNATIONAL
2015
RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia.
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FIRST UN POLICY EVENT
2019
RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.
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UHC INCLUDES RARE DISEASES
2019
Rare Diseases are included in the UN Political Declaration on Universal Health Coverage
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AGREEMENT WITH WHO
2019
WHO and RDI sign a Memorandum of Understanding for future collaboration
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UN RESOLUTION
2021
The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”
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GLOBAL ADVOCACY CAMPAIGN
2021
Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021
Advocacy Toolkit
SOCIAL MEDIA
